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Journal of Language and Social Psychology, Vol. 25, No. 4,
423-436 (2006)
DOI: 10.1177/0261927X06292768
Finding a New Voice
Writing Through Health Adversity
Ellen Bouchard Ryan
McMaster University, Hamilton, Canada
This memorial tribute to James J. Bradac draws on lessons friends and colleagues learned through his witness of living well with serious disability. Analysis of published disability narratives provides the basis for identifying how writing for self and others empowers persons with acquired disability. Acquiring a disability can threaten a person's sense of self and ability to communicate effectively with others. Journal writing allows individuals to rediscover their sense of self, to release complex emotions by naming them, and work their way through the many changes in their daily lives. In particular, a person acquiring a disability must learn how to balance efforts to maintain "normality" with the need to accept changes. Writing for others helps the author clarify personal experience, find meaning, and make a valuable social contribution. Specific benefits of the written social voice are outlined in terms of both process and outcomes. Published illness narratives put a face on disability, engender empathy, advocate for a%"disability-friendly" society, and show how the human spirit can transcend disability.
Key Words: disability • written communication • narratives • empowerment • communication predicaments • selective assertiveness • Alzheimer's Disease
References
- Becker, S. (2004). I’ve had brain surgery, what's your excuse? An illustrated memoir. New York: Workman.
- Booth, W. (1992). The art of growing older: Writers on living and aging. New York: Poseidon.
- Bradac, J. J. (1995). ALS dreams. Santa Barbara, CA: Knockinclash.
- Bradac, J. J. (1998, November). It's all in your head. ICA Newsletter, pp. 4-5.
- Bradac, J. J. (2001). Theory comparison: Uncertainty reduction, problematic. Journal of Communication, 51, 456-472.[CrossRef][ISI]
- Braithwaite, D., & Thompson, T. (Eds.). (2000). The handbook of communication and physical disability. Mahwah, NJ: Lawrence Erlbaum.
- Bryden, C. (2005). Dancing with dementia: My story of living positively with dementia. London: Jessica Kingsley.
- Campbell, J. (2001). The hero's journey: Joseph Campbell on his life and work. New York: New World Library.
- Cousins, N. (1979). Anatomy of an illness as perceived by the patient. New York: Bantam.
- Dass, R. (2000). Still here: Embracing changing, aging and dying. New York: Riverhead.
- DeBaggio, T. (2002). Losing my mind: an intimate look at life with Alzheimer's. New York: Free Press.
- DeBaggio, T. (2003). When it gets dark: An enlightened reflection on life with Alzheimer's. New York: Free Press.
- Fox, S., & Giles, H. (1997). Let the wheelchair through: An intergroup approach to interability communication. In W. P. Robinson (Ed.), Social groups and identity: The developing legacy of Henri Tajfel (pp. 215-248). Oxford, UK: Heineman.
- Frank, A. W. (1991). At the will of the body: Reflections on illness. Boston: Houghton Mifflin.
- Frank, A. W. (1993). The rhetoric of self-change: Illness experience as narrative. Sociological Quarterly, 34, 39-52.
- Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
- Frankl, V. (1963). Man's search for meaning. New York: Pocket.
- Gallois, C. (2004). Communicating disability: Stereotypes, identity, and motivation. In S. H. Ng, C. N. Candlin, & C. Y. Chiu (Eds.), Language matters: Communication, identity, and culture (pp. 355-374). Hong Kong: City University of Hong Kong Press.
- Goldberg, N. (2000). Thunder and lightning: Cracking open the writer's craft. New York: Bantam.
- Harwood, J., & Giles, H. (Eds.). (2005). Intergroup communication: Multiple perspectives. New York: Peter Lang.
- Henderson, C. S., & Andrews, N. (1998). Partial view: An Alzheimer's journal. Dallas, TX: Southern Methodist University.
- Keller, H. (2003). The world I live in (R. Shattuck, Ed.). New York: New York Review Books. (Original work published 1908)
- Kenyon, G. M., & Randall, W. L. (1997). Restorying our lives: Personal growth through autobiographical reflection. Westport, CT: Praeger.
- Kleege, G. (1999). Sight unseen. New Haven, CT: Yale University Press.
- Klein, B. S. (1997). Slow dance: A story of stroke, love and disability. Toronto, Canada: Knopf.
- Kleinman, A. (1988). The illness narrative: Suffering, feeling and the human condition. New York: Basic Books.
- Kubler-Ross, E., & Kessler, D. (2000). Life lessons: Two experts on death and dying teach us about the mysteries of life and living. New York: Scribner.
- Mairs, N. (1986). Waist-high in the world: A life among the nondisabled (large print ed.). Thorndike, ME: G. K. Hall.
- Mccrum, R. (1998). My year off: Recovering life after a stroke. New York: Norton.
- Michalko, R. (1998). The mystery of the eye and the shadow of blindness. Toronto, Canada: University of Toronto Press.
- Ng. S. H., & Bradac, J. J. (1993). Power in language: Verbal communication and social influence. Thousand Oaks, CA: Sage.
- Pennebaker, J. W., & Seagal, J. D. (1999). Forming a story: The health benefits of narrative. Journal of Clinical Psychology, 55, 1243-1254.[CrossRef][ISI][Medline]
[Order article via Infotrieve]
- Poulson, J. (2002). The doctor will not see you now. Ottawa, Canada: Novalis.
- Ryan, E. B., Bajorek, S., Beaman, A., & Anas, A. P. (2005). "I just want you to know that ‘them’ is me": Intergroup perspectives on communication and disability. In J. Harwood & H. Giles (Eds.), Intergroup communication: Multiple perspectives (pp. 117-137). New York: Peter Lang.
- Ryan, E. B., Giles, H., Bartolucci, G., & Henwood, K. (1986). Psycholinguistic and social psychological components of communication by and with the elderly. Language and Communication, 6, 1-24.
- Ryan, E. B., Pearce, K., Anas, A. P., & Norris, J. E. (2004). Writing a connection: Intergenerational communication through stories. In M. W. Pratt & B. E. Fiese (Eds.), Family stories and the lifecourse: Across time and generations (pp. 375-398). Mahwah, NJ: Lawrence Erlbaum.
- Ryan, E. B., Spykerman, H., & Anas, A. (2005). Writers with dementia: The interplay among reading, writing, and personhood. In B. H. Davis (Ed.), Alzheimer talk, text and context: Identifying communication enhancement (pp. 190-198). New York: Palgrave Macmillan.
- Sacks, O. (1984). A leg to stand on. London: Duckworth.
- Sarton, M. (1989). After the stroke: A journal. Boston: G. K. Hall.
- Smyth, J. M., & Pennebaker, J. W. (1999). Sharing one's story: Translating emotional experiences into words as a coping tool. In C. R. Snyder (Ed.), Coping: The psychology of what works (pp. 70-89). Lawrence: University of Kansas Press.
- Styron, W. (1982). Darkness visible: A memoir of madness. Toronto: Random House.
- Tennen, H., & Affleck, G. (1999). Finding benefits in adversity. In C. R. Snyder (Ed.), Coping: The psychology of what works (pp. 278-304). Lawrence: University of Kansas Press.
- Truscott, M. (2003). Life in the slow lane. Alzheimer's Care Quarterly, 4, 11-17.
- Truscott, M. (2004). Adapting leisure and creative activities for people with early stage dementia. Alzheimer's Care Quarterly, 5, 92-102.
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S. E. Stern
Computer-Synthesized Speech and Perceptions of the Social Influence of Disabled Users
Journal of Language and Social Psychology,
September 1, 2008;
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254 - 265.
[Abstract]
[PDF]
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